VHL Alliance Medical Symposium
Advancing Research, Treatment, and Care for Von Hippel-Lindau Disease
Nov 6–8, 2026
Boston, MA
20+ Speakers
Pioneering Progress in VHL Research
The 17th International VHL Medical Symposium, hosted by the VHL Alliance and Massachusetts General Hospital, will bring scientists, clinicians, and advocates together for two days of collaboration, idea exchange, and thought leadership.
This premier event features cutting-edge presentations, collaborative workshops, and networking opportunities designed to accelerate progress in understanding and treating VHL disease.
Years of advancing VHL research and patient care
Symposium Highlights
Experience three days of comprehensive programming designed to advance VHL research, improve patient outcomes, and strengthen our global community.
Cutting-Edge Research
Discover the latest breakthroughs in VHL disease research, including novel therapeutic approaches and clinical trial updates from leading institutions worldwide.
Clinical Best Practices
Learn evidence-based strategies for VHL disease management, surveillance protocols, and multidisciplinary care coordination from experienced clinicians.
Patient Advocacy
Engage with patient advocates and families to understand lived experiences, share resources, and strengthen the VHL community support network.
Expert Presentations
Attend sessions led by world-renowned VHL specialists covering genetics, surgical innovations, targeted therapies, and emerging treatment modalities.
Networking Opportunities
Connect with researchers, clinicians, industry partners, and patient advocates to foster collaborations and advance VHL research initiatives.
Educational Workshops
Participate in hands-on workshops covering genetic counseling, clinical trial design, patient communication, and translational research methodologies.
Lodging & Accommodations
We've partnered with the Hyatt Regency Boston/Cambridge as the official hotel for the 2026 VHL Alliance Medical Symposium.
Hyatt Regency Boston/Cambridge
Located along the Charles River in Cambridge, the Hyatt Regency Boston/Cambridge offers stunning skyline views and easy access to Boston's world-class medical and research institutions. The hotel is just minutes from Massachusetts General Hospital and Harvard Medical School.
A special group rate has been arranged for symposium attendees. Be sure to book early — rooms at the group rate are limited and available on a first-come, first-served basis.
Group Rate Available
Special discounted rates have been negotiated for VHL Alliance symposium attendees. Use the booking link above to access the group rate.
Book Early
The room block is limited. We recommend booking your accommodations as soon as possible to secure your preferred dates at the group rate.
Venue Proximity
The hotel is conveniently located near the symposium venue, making it easy to attend all sessions, workshops, and networking events.
Meet The Hosts
Our symposium is led by a dedicated team of world-class scientists, clinicians, and advocates committed to advancing VHL research and patient care.
Dr. Ruhee Dere
Dr. Othon Iliopoulos
Joshua Mann
Dr. Jessica Hess
Janet Thompson
Join Us at the 2026 Symposium
Register today to secure your spot!
Patient/Student
Early Bird Rate
Postdoc/Resident
Family Member
Scientist/Clinician
Professional Rate
Corporate/Industry
Business Rate