VHL Alliance Medical Symposium
Advancing Research, Treatment, and Care for Von Hippel-Lindau Disease
Nov 6–8, 2026
Boston, MA
World Renowned Speakers
Pioneering Progress in VHL Research
The 17th International VHL Medical Symposium, hosted by the VHL Alliance and Mass General Brigham, will bring scientists, clinicians, and advocates together for two days of collaboration, idea exchange, and thought leadership.
This premier event features cutting-edge presentations, collaborative workshops, and networking opportunities designed to accelerate progress in understanding and treating VHL disease.
Hosted in partnership with
Years of advancing VHL research and patient care
Symposium Highlights
Experience three days of comprehensive programming designed to advance VHL research, improve patient outcomes, and strengthen our global community.
Cutting-Edge Research
Discover the latest breakthroughs in VHL disease research, including novel therapeutic approaches and clinical trial updates from leading institutions worldwide.
Clinical Best Practices
Learn evidence-based strategies for VHL disease management, surveillance protocols, and multidisciplinary care coordination from experienced clinicians.
Patient Advocacy
Engage with patient advocates and families to understand lived experiences, share resources, and strengthen the VHL community support network.
Expert Presentations
Attend sessions led by world-renowned VHL specialists covering genetics, surgical innovations, targeted therapies, and emerging treatment modalities.
Networking Opportunities
Connect with researchers, clinicians, industry partners, and patient advocates to foster collaborations and advance VHL research initiatives.
Educational Workshops
Participate in hands-on workshops covering genetic counseling, clinical trial design, patient communication, and translational research methodologies.
Featured Keynote
M. Celeste Simon, Ph.D.
Arthur H. Rubenstein, MBBCh Chair of Cell and Developmental Biology
University of Pennsylvania Perelman School of Medicine
M. Celeste Simon, Ph.D. is an investigator of the Abramson Family Cancer Research Institute (AFCRI) and Arthur H. Rubenstein, MBBCh Chair of Cell and Developmental Biology at the University of Pennsylvania Perelman School of Medicine. She served as the AFCRI Scientific Director for 18 years (2007–2025) and was an Associate Director of the Abramson Cancer Center 2017–2025.
Dr. Simon's research focuses on how cells sense and respond to changes in the availability of molecular oxygen and nutrients — affecting normal development, physiology, and diseases such as solid tumor growth. The Simon Laboratory studies how O₂ sensing impacts tumor inflammation, metabolism, metastasis, and overall disease progression.
She employs both animal models and cancer patient samples with the ultimate goal of developing novel strategies to treat tumors such as pancreatic cancer, soft tissue sarcoma, hepatocellular carcinoma, and renal cancer.
Years as HHMI Investigator
Years as AFCRI Scientific Director
National Academy Memberships
Lodging & Accommodations
We've partnered with the Hyatt Regency Boston/Cambridge as the official hotel for the 2026 VHL Alliance Medical Symposium.
Hyatt Regency Boston/Cambridge
Located along the Charles River in Cambridge, the Hyatt Regency Boston/Cambridge offers stunning skyline views and easy access to Boston's world-class medical and research institutions. The hotel is just minutes from Massachusetts General Hospital and Harvard Medical School.
We've secured a room block at a special group rate exclusively for VHL Alliance symposium attendees. The booking link will be shared here soon — check back for updates or watch for our email announcement.
Group Rate Available
Special discounted rates have been negotiated for VHL Alliance symposium attendees. The booking link will be available soon — check back for updates.
Book Early
The room block is limited. We recommend booking your accommodations as soon as possible to secure your preferred dates at the group rate.
Venue Proximity
The hotel is hosting all symposium events, making it easy to attend all sessions and workshops.
Meet The Hosts
Our symposium is led by a dedicated team of world-class scientists, clinicians, and advocates committed to advancing VHL research and patient care.
Dr. Othon Iliopoulos
Dr. Ruhee Dere
Joshua Mann
Dr. Jessica Hess
Janet Thompson
Highlights from 2024
A look back at the 16th International VHL Medical Symposium in Milan.
Join Us at the 2026 Symposium
Register today to secure your spot!
Patient Advocates & Students
Postdocs & Residents
Scientists & Clinicians
Corporate & Industry Rate